Osoby z zaburzeniami ze spektrum autyzmu a relacje romantyczne – przegląd literatury

Osoby z zaburzeniami ze spektrum autyzmu a relacje romantyczne – przegląd literatury

People with autism spectrum disorders and romantic relationships – a review of the literature


Alicja Dubiel
ORCID: 0009-0009-7670-5748
Uniwersytet Komisji Edukacji Narodowej w Krakowie

Irmina Bubula
ORCID: 0009-0003-5734-2992
Uniwersytet Komisji Edukacji Narodowej w Krakowie


Abstrakt:

Zaburzenia ze spektrum autyzmu (ASD) zarówno w przypadku dorosłych i młodzieży są związane z zaburzeniami w zakresie teorii umysłu. Co z kolei pośrednio wpływa na społeczne tworzenie relacji międzyludzkich, a zatem również dotyczy relacji romantycznych. Pojawiające się trudności w relacjach romantycznych mogą być związane nie tylko z nieumiejętnością interpretowania stanów intrapsychicznych innych osób, ale również mogą być powiązane z trudnościami w integracji sensorycznej. Zarówno w kontekście nadwrażliwości jak i niewystarczającej wrażliwości w odbiorze percepcyjnym świata. w tym aspekcie proces terapeutyczny powinien wiązać się z opieką lub/i wsparciem sensorycznym. w związku z trudnościami w relacjach, obszar relacji romantycznych u osób z zaburzeniami ze spektrum autyzmu wydaje się być bardzo istotną sferą do wsparcia przez różne potwierdzone naukowo interwencje. Interwencje te powinny dotyczyć zarówno wspomaganie osób z ASD w trwaniu w relacji oraz w budowaniu intymnej i bliskiej relacji z partnerem. Ważnym obszarem w ramach interwencji również wydają się być: zmniejszanie lęku przed inicjacją relacji czy inicjacji aktu intymnego, a także procesem odkrywania własnej tożsamości seksualnej. Równie kluczowym obszarem wydaje się być edukacja seksualna zarówno w obszarze zagrożeń przed nadużyciami na tle seksualnym, ale także w sferze lepszego samopoznania u osób z ASD. Nadal niewiele interwencji jest w pełni metodologicznie poprawnie zweryfikowanych, w związku z czym nadal mało można powiedzieć o skuteczności terapii dla par, w których przynajmniej jeden z partnerów jest osobą z zaburzeniami ze spektrum autyzmu. Ważnym jest, aby temat randkowania i budowania relacji romantycznych wśród osób z ASD przestał być tematem tabu, a podejście terapeutyczne stało się dużo bardziej kompleksowe.

Słowa kluczowe: zaburzenia ze spektrum autyzmu, dorośli i młodzież, teoria umysłu, relacje romantyczne, integracja sensoryczna, interwencje wspierające

Abstract:

Autism spectrum disorders (ASD) in both adults and adolescents are associated with disturbances in the theory of mind. Which indirectly affects the social formation of interpersonal relationships, and therefore also affects romantic relationships. Emerging difficulties in romantic relationships may not only be related to an inability to interpret the intrapsychic states of others but may also be related to difficulties in sensory integration. Both in the context of hypersensitivity and insufficient sensitivity. In this aspect, the therapeutic process should involve care and/or sensory support. In connection with relationship difficulties, the area of romantic relationships in the context of people with spectrum disorders, autism seems to be a very important sphere to be supported by various scientifically validated interventions. Interventions should address both supporting individuals with ASD to stay in the relationship and to build an intimate and close relationship with their partner. Reducing the fear of initiating a relationship or initiating an intimate act, as well as the process of discovering one’s sexual identity. Also, it seems to be an important areas for intervention. Additionally, sex education seems to be a very important area, both in the context of threats against sexual abuse but also in the realm of better self-discovery by people with ASD. There are still few interventions that are fully methodologically correctly validated, and as a result, there is still little to be said about the effectiveness of therapy for couples in which at least one of the partners is a person with an autism spectrum disorder. It is important that the topic of dating and building romantic relationships among people with ASD ceases to be a taboo subject, and that the therapeutic approach becomes much more comprehensive.

Key words: autism spectrum disorder, adults and adolescents, theory of mind, romantic relationships, sensory integration, supportive interventions

Propozycja cytowania:
Dubiel, A., Bubula, I. (2024). Osoby z zaburzeniami ze spektrum autyzmu a relacje romantyczne – przegląd literatury. Zeszyty Naukowe Pedagogiki Specjalnej, 17, 65-80.

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 Bibliografia:

  • Altschuler, M. R., Sideridis, G. D., Kala, S., Warshawsky, M., Gilbert, R., Carroll, D., Burger-Caplan, R., Faja, S. (2018). Measuring Individual Differences in Cognitive, Affective, and Spontaneous Theory of Mind Among School-Aged Children with Autism Spectrum Disorder. Journal of Autism and Developmental Disorders, 48(11), 3945–3957. https://doi.org/10.1007/s10803-018-3663-1
  • Apperly, I. A. (2012) What is “theory of mind”? Concepts, cognitive processes and individual differences. The Quarterly Journal of Experimental Psychology, 65(5), 825-839. https://doi.org/10.1080/17470218.2012.676055
  • Aνδρέου, Μ., Skrimpa, V. (2020). Theory of Mind Deficits and Neurophysiological Operations in Autism Spectrum Disorders: a review. Brain Sciences, 10(6), 393. https://doi.org/10.3390/brainsci10060393
  • Bamicha, V. Drigas, A. (2022). ToM i ASD: Relating theory of mind to the social-emotional and cognitive development of children with autism spectrum disorders. The use of information and communication technologies as an alternative form of intervention in AS. Technium Social Sciences Journal , 33, 42-72.
  • Baron-Cohen, S. (2010). Empathizing, systemizing, and the extreme male brain theory of autism. Progress in. Brain ResearchRes., 186, 167–175. https://doi.org/10.1016/B978-0-444-53630-3.00011-7
  • Beato-Fernández, L., Correia, M. (2022). Love and Intimate relationships in adolescents and adults with autism spectrum disorders. W: C. Pracana, M. Wang (red.), Psychological Applications and Trends. inScience Press (s. 282-286). https://doi.org/10.36315/2022inpact066
  • Bennett, M., Webster, A., Goodall, E., Rowland, S. (2018). Intimacy and romance across the autism spectrum: Unpacking the “Not interested in Sex” myth. W: Life on the Autism Spectrum. Springer (s. 195–211). https://doi.org/10.1007/978-981-13-3359-0_10
  • Brown, C. E., Sheerin, K. M., Quetsch, L. B., Borduin, C. M. (2023). Family–Friendship linkages in youths with autism spectrum disorder. Family Relations, 1–14. https://doi.org/10.1111/fare.12879
  • Carlson, S. M., Koenig, M. A., Harms, M. B. (2013). Theory of mind. Wiley interdisciplinary reviews. Cognitive science4(4), 391–402. https://doi.org/10.1002/wcs.1232
  • Clince, M., Connolly, L., Nolan, C. (2016). Comparing and Exploring the Sensory Processing Patterns of Higher Education Students With Attention Deficit Hyperactivity Disorder and Autism Spectrum Disorder. The American journal of occupational therapy : official publication of the American Occupational Therapy Association70(2). https://doi.org/10.5014/ajot.2016.016816
  • Dellapiazza, F., Michelon, C., Oreve, M. J., Robel, L., Schoenberger, M., Chatel, C., Vesperini, S., Maffre, T., Schmidt, R., Blanc, N., Vernhet, C., Picot, M. C., Baghdadli, A., ELENA study group (2020). The Impact of Atypical Sensory Processing on Adaptive Functioning and Maladaptive Behaviors in Autism Spectrum Disorder During Childhood: Results From the ELENA Cohort. Journal of autism and developmental disorders50(6), 2142–2152. https://doi.org/10.1007/s10803-019-03970-w
  • Derakhshanrad, S. A., Piven, E., Ghoochani, B. Z. (2022). The relationship between sensory experiences and social functioning in children with autism spectrum disorder. International Journal of Developmental Disabilities, 1–9. https://doi.org/10.1080/20473869.2022.2128553
  • Dubreucq, M., Dubreucq, J. (2021). Toward a Gender-Sensitive Approach of Psychiatric Rehabilitation in Autism Spectrum Disorder (ASD): a Systematic Review of Women Needs in the Domains of Romantic Relationships and Reproductive Health. Frontiers in psychiatry12, 630029. https://doi.org/10.3389/fpsyt.2021.630029
  • Dunn, W. (1997). The Impact of Sensory Processing Abilities on the Daily Lives of Young Children and Their Families: a Conceptual Model. Infants and Young Children, 9, 23-35. https://doi.org/10.1097/00001163-199704000-00005
  • Engelhard, E. S., Vulcan, M. (2021). The Potential Benefits of Dance movement therapy in Improving couple Relations of Individuals Diagnosed with Autism Spectrum Disorder -A Review. Frontiers in Psychology, 12. https://doi.org/10.3389/fpsyg.2021.619936
  • Exell, R., Hilari, K., Behn, N. (2020). Interventions that support adults with brain injuries, learning disabilities and autistic spectrum disorders in dating or romantic relationships: a systematic review. Disability and Rehabilitation, 44(12), 2567–2580. https://doi.org/10.1080/09638288.2020.1845824
  • Gilmour, L., Schalomon, P. M., Smith, V. (2012). Sexuality in
    a community based sample of adults with autism spectrum disorder. Research in Autism Spectrum Disorders, 6(1), 313–318. https://doi.org/10.1016/j.rasd.2011.06.003
  • Gonthier, C., Longuépée, L., Bouvard, M. (2016). Sensory Processing in Low-Functioning Adults with Autism Spectrum Disorder: Distinct Sensory Profiles and Their Relationships with Behavioral Dysfunction. Journal of Autism and Developmental Disorders, 46(9), 3078–3089. https://doi.org/10.1007/s10803-016-2850-1
  • Hilton, C., Graver, K., LaVesser, P. (2007). Relationship between social competence and sensory processing in children with high functioning autism spectrum disorders. Research in Autism Spectrum Disorders, 1(2), 164–173. https://doi.org/10.1016/j.rasd.2006.10.002
  • Kasari, C., Patterson, S. (2012). Interventions addressing social impairment in autism. Current psychiatry reports14(6), 713–725. https://doi.org/10.1007/s11920-012-0317-4
  • Kern, J. K., Garver, C. R., Carmody, T., Andrews, A. A., Trivedi, M. H., Mehta, J. A. (2007). Examining sensory quadrants in autism. Research In Autism Spectrum Disorders, 1(2), 185–193. https://doi.org/10.1016/j.rasd.2006.09.002
  • Koegel, L.K., Detar, W.J., Fox, A., Koegel, R.L. (2014). Romantic Relationships, Sexuality, and Autism Spectrum Disorders. W: F. Volkmar, B. Reichow, J. McPartland (red.), Adolescents and Adults with Autism Spectrum Disorders. New York: Springer. https://doi.org/10.1007/978-1-4939-0506-5_5
  • Mazurek, M. O., Petroski, G. F. (2015). Sleep problems in children with autism spectrum disorder: examining the contributions of sensory over-responsivity and anxiety. Sleep medicine16(2), 270–279. https://doi.org/10.1016/j.sleep.2014.11.006
  • Misailidi, P. (2003). Children’s Theory of Mind. Athens: TYPOTHITO.
  • Parchomiuk, M. (2018). Sexuality of Persons with Autistic Spectrum Disorders (ASD). Sexuality and Disability, 37(2), 259–274. https://doi.org/10.1007/s11195-018-9534-z
  • Stokes, M. A., Kaur, A. (2005). High-functioning autism and sexuality. Autism, 9(3), 266–289. https://doi.org/10.1177/1362361305053258
  • Strunz, S., Schermuck, C., Ballerstein, S., Ahlers, C. J., Dziobek, I., Roepke, S. (2016). Romantic Relationships and Relationship Satisfaction Among Adults With Asperger Syndrome and High-Functioning Autism. Journal of Clinical Psychology, 73(1), 113–125. https://doi.org/10.1002/jclp.22319
  • Syu, Y. C., Huang, P. C., Wang, T. Y., Chang, Y. C., Lin, L. Y. (2020). Relationship Among Sensory Over-Responsivity, Problem Behaviors, and Anxiety in Emerging Adults with Autism Spectrum Disorder. Neuropsychiatric disease and treatment16, 2181–2190. https://doi.org/10.2147/NDT.S270308
  • Tseng, M. H., Fu, C. P., Cermak, S. A., Lu, L., Shieh, J. Y. (2011). Emotional and behavioral problems in preschool children with autism: Relationship with sensory processing dysfunction. Research in Autism Spectrum Disorders, 5(4), 1441-1450. https://doi.org/10.1016/j.rasd.2011.02.004
  • Ujiie, Y., Takahashi, K. (2022). Associations between self-reported social touch avoidance, hypersensitivity, and autistic traits: Results from questionnaire research among typically developing adults. Personality and Individual Differences, 184, 111186. https://doi.org/10.1016/j.paid.2021.111186
  • Urban, T. M., Douglas, R. R. (2024). Occupational Therapists’ Role in Sexual Education for Teens and Young Adults Living with Autism Spectrum Disorder. The Open Journal of Occupational Therapy, 12(1), 1-4. https://doi.org/10.15453/2168-6408.2093
  • WHO (2018). ICD-11. Pobrano z https://icd.who.int.
  • Zelazo, P. D., Jacques, S., Burack, J. A., Frye, D. (2002). The relation between theory of mind and rule use: Evidence from persons with autism-spectrum disorders. Infant and Child Development, 11(2), 171–195. https://doi.org/10.1002/icd.304